Story Of This Spark

What is the inspiration?
I was a "diagnosed" with ALS on August 24, 2010. As a 35-year-old father of four young children, this news turned our world world upside down. My unusually slow "progression" has allowed me time to research, work with the world's top ALS experts, and to become an active voice in the ALS community. I see this challenge as the lynch pin in unraveling the devastating mystery we call ALS.
Why is this important to me?
This technology has the potential to impact millions of lives by: eliminating misdiagnosis (thereby allowing treatable conditions to be treated); allowing early ALS diagnosis (effectively increasing the time between symptom onset and death by 25%); cracking the code of the biology of ALS (paving the home way for therapy development and a cure); and making progress in a host of related diseases.


Lou Gherig's syndrome


amyotrophic lateral sclerosis

motor neuron disease

neurological disease

BioSciences/ Pharmaceuticals

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